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New You Tube video uploaded on information links and treatment update.


While on treatment my testosterone level is normally around 10.0 to 11.0 nmol/l (288 to 317 ng/dl). Without treatment my testosterone level is below 1.0 nmol/l. I spent my entire teenage years with virtually no testosterone at all. I did not start treatment until I was 24 years old.
My test results on this video showed a level of 2.6 nmol/l (75 ng/dl) this is when I was on Pregnyl or hCG (human chorionic gonadotropin). The dose was not high enough for me and was not giving me a high enough level so I switched to using the gel soon after. Pregnyl was not easy to come by at the time so I was only using about half the dose I should have been taking.
Normally I get better levels while on Pregnyl and I prefer to have a the natural testosterone hCG can give me rather than the injected form. When I have been on Nebido  (testosterone undecanoate) in the past I have achieved testosterone levels of over 20 nmol/l, so that is always an option to go back to.
I will hopefully switch back to using hCG at a higher dose as soon as I can. Pregnyl is no longer available in the UK so I am going to have to see if I be prescribed an alternative form of hCG.
I am always keen to try out fertility treatments. There is a treatment involving the GnRH pump which is only available in a small number of countries. If I ever get a chance to get onto that I would jump at the chance.

Twenty four hours with a sense of smell.

Anosmia is one of the defining symptoms of Kallmann syndrome. The sense of smell might not appear to be the most important of our senses but you do miss out on sensations and experiences that other people take for granted.


Update on fertility treatment from a fellow KS patient.


Hey guys

fisrt and foremost I just want to wish you all a very Happy Christmas.

Thought I would take the time now like you do on Christmas Day while everybody is eating and drinking and having food baby’s from eating too much to write another blog post.

Since the last post I have been and had another check up at the CHUV hospital in Lausanne. This was my first check up since starting HcG treatment. During this visit I had a brain scan and an ultra sound on my kidneys.

First of the all the brain scan. Yes, I do have a brain which may be a surprise to some of my friends and family I know have proof of That. I had the brain scan done so the doctors could see if  my Olfactory bulbs were there or not and to see if my inner ear development was…

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Kallmann syndrome – a patient’s story.

Jerome is a doctor working in Chicago, USA. He recently had his Kallmann syndrome story posted on the Past 10 website.

Jerome Lane – Past Ten



Information links to Kallmann syndrome.

I have gathered together a range of reference pages and videos on Kallmann syndrome & hypogonadotropic hypogonadism.

There are links to Facebook patient groups, You Tube videos on Kallmann syndrome, personal websites and professional websites.

I have linked all the information in one place to help people access information on Kallmann syndrome.

Kallmann syndrome information pages

Frequently asked questions on Kallmann Syndrome & Hypogonadotropic Hypogonadism.

I recently met up with Dr Andrew Dwyer at Boston College, US.

Dr Dwyer has over 15 years experience as a nurse practitioner and researcher into Kallmann syndrome and CHH, working both in Europe and the US.

I put a series of some frequently asked questions on Kallmann syndrome to Dr Dwyer which have been recorded in these three videos.

Video 1:

Video 2:

Video 3:

You Tube video on Kallmann syndrome produced by


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