IamHH patient group & Boston patient meeting.
A new patient group, called IamHH has been created to help both patients and health care professionals learn more about Kallmann syndrome and CHH. The group is registered as a not for profit patient charity group in the US and is applying for recognised patient group status with the National Organisation for Rare Disorders within the US.
The new IamHH group will have a new website and social media feeds. In order to help in the process of setting up the group a GoFundMe page has been set up for donations. Any help would be gratefully received and all funds will go to creating the website and generating resources to help patients.
A patient meeting has been organised by IamHH for Saturday 8th October 2022 at Boston College, hosted by Dr Andrew Dwyer.
Kallmann Syndrome - delayed or absent puberty 