On line patient meeting and focus group via Zoom. Feb 13th 2021.
On line patient meeting via Zoom hosted by Dr Andrew Dwyer of Boston College, USA.
It will be a chance to talk to fellow patients and to hear a presentation given by an experienced medical expert on Kallmann syndrome / CHH. There is no set topic for this meeting but Dr Dwyer will be giving a presentation to include fertility treatments and body image / intimacy issues.
The meeting will be followed by a focus group hosted by Dr Dwyer as part of his research into patient involvement in health treatment and information. A $20 Amazon gift voucher for participating in the group discussion is available.
Starting times:
4pm EST – Boston, USA,
9pm – UK, London,
8am (Sun 14th), – Sydney, Aus.
Link to register for the meeting and to receive the Zoom link:
Kallmann Syndrome - delayed or absent puberty 
I was wondering if my son’s Kallmans puts him at a higher risk for severe outcomes of COVID-19 and if that would qualify him legally and ethically for vaccine. I have read the literature that low testosterone is a marker for increased risk of sever COVID-19. Do u have any info?
I have spoken to KS medical experts in the US and UK and they both say there is apparently no increased risk of catching COVID from having low testosterone with Kallmann syndrome.
Testosterone levels does affect the immune system but it is still not confirmed just how much of a role testosterone plays. You can get lower testosterone levels in some patients with severe COVID symptoms but it is not totally clear whether the low testosterone is a result of the COVID infection, rather than helping to cause the more severe outcomes.
There has been no published info so far on KS patients with COVID and neither of the two KS medical experts I have spoken to have treated a KS patient with a COVID infection yet.