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Anonymous online​ survey for KS / CHH patients.

June 29, 2018

I hope to create a few online surveys using SurveyMonkey to collect information on KS / CHH patients to see if there are any similarities or differences in our experiences with the condition.

The first survey is just a general introduction with simple questions. If there is enough interest I might generate more surveys with more personal/intimate​ questions.

There are some questions I know some KS / CHH patients want to ask but due to the nature of the condition,​​ they find it difficult to ask. I want to generate some anonymous information that could help answer fellow patient questions hopefully.

I will post the results of the surveys here and in the Facebook groups.

Initial survey 1 – KS / CHH

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