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Rare Disease Day 2018 – 28th February. Kallmann syndrome story.

February 25, 2018

Rare Disease Day 2018 consists of a series of events coordinated by the European Network for rare disorders and aims to highlight rare disorders. It is partnered by rare disease organisations around the world including Rare Disease UK and the National Organisation for Rare Disorders (NORD) in the US.

These organizations provide support for patients with rare disorders and help raise awareness of rare conditions.

Rare Disease Day 2018.  

I am always keen to try to raise awareness of Kallmann syndrome and other forms of GnRH deficiency conditions. I enjoy talking about the condition with others to help to try raise awareness of the condition.

One of my KS friends has had his story posted on the Rare Disease website:

Personal Story: Ivan Borshchevsky, Kallmann syndrome, Russian Federation, February 23, 2018

 

 

 

 

 

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