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KS / CHH Patient Information Survey

September 20, 2016

Andrew Dwyer is a clinical researcher and specialist clinical nurse treating KS / CHH patients based at CHUV hospital in Lausanne, Switzerland.

As part of the European group working on GnRH deficiency disorders he is working on developing methods to help patients gain access to information on Kallmann syndrome / CHH. The final aim is to help patients gain access to expert clinicians and fellow patients in order to help raise awareness of the condition and ensure information on the diagnosis and treatment of KS / CHH is passed on to patients.

Attached is a link to recently produced patient information sheets and a short survey which will help in the production of more patient information.

I think patients will find these information sheets a useful source of information about their condition and a way of introducing their condition to other people who may be interested.

Patient Information survey

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