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2014 KS / CHH research study at Penn State University, USA.

December 10, 2014

This is an on-going research study which is still open and they are actively seeking people to participate:


Lauramarie Pope
Department of Anthropology
Penn State University

Study Information:

We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for an online study administered through the Penn State Department of Anthropology regarding hormone replacement therapy and psychological well-being.
To participate, you must be at least 18 years old. Although you may wish to participate out of a desire to promote this research, you will also be compensated for your participation (about 45 minutes online) with $25.

We would also like relatives of IHH participants (siblings or first cousins) to participate in the study. If you have IHH (including KS) and have a relative who might also be interested in participating, please pass this information on to them.

You may still participate even if you do not have a relative who is willing to participate in this study.

For more information about participating in this study, or to sign up, please contact Lauramarie at If you have any general questions about this project or our overall research goals, please contact Dr. David Puts at or visit

  1. This research programme is still on going as of April 2015 and they are still keen to hear from any KS / CHH patient or relative of a patient who wishes to rake part.

  2. Heather Self permalink

    This study is still on going and we plan to continue to recruit participants until May of this year (2016). Some of the information in this post is out of date.

    Our new website URL is:

    Lauramarie Pope is no longer working on this study. Please e-mail me: Heather Self at instead. Dr. Puts’s e-mail remains the same.

    Heather Self
    Study Coordinator
    Penn State University

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